December 18, 2016

But you don't look sick

The year is slowly coming to an end. I usually don't share much about my personal life, especially when it comes to health, but I feel like now is the right time. As a fashion blogger, I believe it's my role to break the glass and bring awareness about illnesses we never speak of : crohn's and ulcerative colitis.

I have been diagnosed with ulcerative colitis about six years ago. It's a lifelong bowel condition where parts of my digestive system become swollen, inflamed and ulcerated. There is no cure and we live without knowing how tomorrow will look like. Everybody's symptoms are different. What is the hardest for me is definitely extreme fatigue and abdominal pain. However, there is something even deeper than that : not being understood.


Ulcerative colitis (and Crohn's) are IBD (Inflammatory Bowel Disease) and therefore are invisible illnesses. From the outside, you'll never know who's fighting against these. "But you don't look sick" is a sentence we're hearing way too often. Indeed I've suffered a lot during my first years being diagnosed. Since nothing was wrong visually, teachers (especially sport teachers) were laughing at me thinking I was lying. Oh, let me tell you how many times I wished that my medical certificate was so damn fake!

Even with the best will of the world, it's really hard for people to understand if they didn't go through the same situation. To understand that these aren't only tummy troubles... One day you're perfectly fine and tomorrow you won't be able to get up of your bed. The Spoon Theory by Christine Miserandino is the perfect article to explain what it is like to live with a disability : I recommend it 100%!

As for my current situation, it's getting worse and cortisone is becoming my long-time friend. Half of 2015 and 2016 were full of flares up and to be completely honest with you : I'm tired - really tired. My quality of life is decreasing, but I can't quit. I have tons of projects therefore I need to get my health back.

I decided to completely change my way of eating : this is my new objective. I'm a food lover so I can tell you already that it's not easy! If you'd like me to do updates on my health and on my meal plan, please let me know. I would love to help you as well, because we are a community. Fell free to follow me on Snapchat and on my Instagram stories to see more of my day.

To end my blog post on a lighter tone, please check this instagram account : Crohn's is CrayPerfect to make you laugh and perfect for spoonies! I also want you to know that if you're suffering from IBD or any other illnesses, you're not alone. Internet is an amazing place to build friendship or community. Have a nice day and take care of yourself!

"You were given this life because you're strong
enough to live it."

2 comments:

  1. I'm so sorry to hear you've been diagnosed with this, my cousin has the same thing and I've heard how tough it can be to deal with! Completely admiring your strength, and I love the quote you've ended this post with by the way :)

    aglassofice.com
    x

    ReplyDelete
    Replies
    1. Thanks a lot!
      Your cousin will have to be strong, but I'm sure he already is! :)

      Delete